August 7, 2011

  • There Are No Morning Glories

     
    There are no morning glories
    nor mosquito bites this summer
    everything was dull
    mundane

    I struggled at the Spring of things
    with issues in my head
    pain and confusion
    more than can be expressed

    I did not take any photos of the strong sunflowers which grew in the window boxes in two windows
    the morning glory vines climbed in vain skyward on last year's strings and solar powered xmas lights.

    The time is different what with
    caffeine poisoning
    trigeminal neuralgia
    resultant mania and panic

    frustration down the toilet and medical tests up the yin yang.

    i was sick but now much better.

    slept well,  dreamed of something like a wall.

    was it the wailing wall?  I don't know. I was visiting a wall in a foreign place.
    the great wall of china for all I know.

    it wasn't keeping me from anything, it was interesting
    it was not a barrier.

    contemplate the concept of  "wall".

    I feel fine today.

    Hope you do as well.
    .
    I am going out for breakfast and continuing the productiveness that was yesterday.

    content and calm and no complaints.
    .
    .

Comments (6)

  • here's hoping you have an awesome day! peace, Al

  • methinks you minimized the effects trigeminal neuralgia I finally got rid of mine with brain surgery.  Peace brother, hope your  day is wonderful.

  • @lotsayears - @lotsayears -  I did not know you had the surgery. wow.

  • I first started having occasional sears of pain on March 12 and it steadily increased untily it was chronic with very little time between episodes.  Mine was controllable with tegritol. When I started 100 mg a day controlled and then the pain would come back and I had to increase the does until I got to 600 miligrams and that was not very effective.  I chose to have gamma knife surgery, which is a non invasive surgery in which they shoot gamma rays onto the nerve to destroy it.  So far it has worked well.  No pain at all, but I was on 600 milligrams of tegritol and can only reduce it by 100 milligrams a week so I have four weeks to go before I am drug free but have had no pain since the surgery.  I am convinced it is gone.  I described my experience in detail on an old blog if you want to check it out.  It was expensive but my insurance covered all of it.  If I can give you any more info please ask.  I had never had head pain of any type so it was a new and debilitating experience for me.

  • Ah in rereading my post I was not clear about the surgery.  It takes 2 doctors and a physics person to do the surgery.  Mine was a bit drawn out because I cannot have an MRI because of a pacemaker.  I met with two nuerosurgons on a tuesday morning and had the surgery on a thrusday morning.  The surgery took about 50 minutes and was non invasive and painless.  I was on that stuff that relaxes you and gives you partial amnesia so I remember only bits and pieces of the process.  They put your head in a wooden frame and fix it to the table where you cannot move (but you dont care because you are only partially awake and there is no pain.) and shoot gamma rays into you head over a 50 minute period.  They release you a couple hours later and you feel fine.  I felt one little surge the next morning but nothing since then.  The reason for the meeting and then delay is where they can go over the discs and make sure it is truly trigeminal and there are no other problems.  I realize this is a bit jumbled but the tegritol affects the thought processes.  I will stay in touch and be available if  you hav e any questions.  Have you tried tegritol  the nueros here say it is the drug of choice for trigeminal.

  • @lotsayears - 

    I feel for you about the medication, I was on 25mg of topomax and it made me really confused, plus seroquel to help me sleep...Seroquel sedated me so that I needed something to wake up again!!! and I had horrible side effects if I was not able to fall asleep quick enough before they began, also, It took me 3 weeks to ween myself of Seroquel, it was horrible, it paralyzed my diaphragm and I could not take a deep breath if I tried to reduce the dosage too fast. I have never had a medication experience like that. Now I am on 12.5 mg of topomax and have been pain free for several weeks.

    the topomax at 25mg made me unable to figure with numbers nor plan things in advance, it literally erased the future from my mind, it was very bizarre, also that kept me from worrying about stuff but it was very very wierd, I was totally dependent on calendars and had no ability to perceive future for any sustained length of time.

    Now I feel fine. Good luck, I have heard of your surgery. My pain is very sporadic and I believe this spell was actually brought on by caffeine poisoning because I was anemic and didnt know it and started taking coffee to counteract it until I was drink 3 pots a day for 3 months before the head pain started. I have had episodes off an on all my life and thought they were migraines until the brain scan clarified the trigeminal nerve and close aberrant vascular structure...

    Thank you so much for sharing.

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